life in the darkness

Today I have had a morning of tachycardia. Heart was racing away at 120 plus beats a minute while sitting. Afterwards, I went to start my university work, but was exhausted. I had to sleep. The problem is, when you’re tachy like that, it makes you so tired. You can’t slow the heart down yourself. People say: breathe, Calm down. That does not work! The only thing I can do is to sleep it off! If I do not sleep, I cannot focus or concentrate at all! My hands are cold and my feet. That’s part of the dysautonomia. I will now just have my cup of tea and then go and attempt my statistics work… Again! I have managed to find the drinks I had when I was at college that helped me manage my fatigue. I had them during exams. They’re called argi plus. They come in small packets, sachets and you put them in cold water and stir them. there’s some medical evidence that it helps with fatigue, but I’m not sure where that is. I shall have to order them online, but they are about £58. Worth it though. I hope people with pots see this post, as it may help you. But that’s only my experience with them. I shall drink my tea and warm my hands up. How I don’t know, as they will just cool down again very quickly. I have started my fludrocortisone now, so have to carry a steroid card. Fun times! But this is the joy of living with pots and IST. My pots is probably mild compared to the IST, but I’ve not had a 24 hour bp cuff, so I wouldn’t know. I do know it dropped a lot during my active stand. Anyway, hope everyone is well. ❤️☺️🤗