life in the darkness

Since 2018, my journey to diagnosis of pots has been a rocky one. From being told in ED time after time, that i am just anxious, or that it’s my fault because I’m underweight, which I have been all my life and we still do not know why. Today, even with a diagnosis, I’m getting told as I grow older, my pots will go away. That is a load of utter rubbish! This happens a lot to us, according to dysautonomia international. Patronised, and talked down too, by cardiologists who think they know it all. IST is also a challenge. It’s also dysautonomia which I have along with the pots. It means my heart is always faster than what it should be. I was diagnosed with disfunctional breathing also, which the cardiologist dismissed as their excuse for saying I was breathless, but they don’t know why. I don’t understand why these people have to do and say these things! I felt validated by a cardiologist, who unfortunately was a locum, and now we’re replaced with someone else. It’s very annoying. I just wish more people were aware of POTS and IST. 2 difficult conditions to treat.