life in the darkness

It’s not normal that I get affected by a storyline on a soap, but this evening, I did. On Coronation street, There is a storyline to do with a guy who has a heart condition: Or so we are lead to believe. Until tonight, when his consultant tells him he has Facticious disorder. Previously known as munchausen. Yes, I’m affected. I have constantly been told by people online that I have it. They are not qualified doctors, neither are they qualified psychiatrists. But they still think they can go round saying this to people and damaging them! To put it bluntly, people with Ehlers-danlos syndrome, a connective tissue disorder, as well as people with POTS, Postural Orthostatic tachycardia syndrome, are constantly being turned away by doctors. Told we are crazy. It’s all in our heads. We have facticious disorder. I’m lucky in that I have found a team of doctors, who actually did the tests, and came up with the evidence, which points to both POTS and EDS. But constantly being told you’re faking? It does damage! Lots of damage! I’m not just speaking for myself, I’m speaking about a good friend of mine. It’s horrible when we get told this. Unsurprisingly, there is a group on a site called Reddit, where chronically ill, judge on whether a person is “faking.” their illnesses or not. The group is called R/Illness fakers. When I went on there, all I saw was horrendous abuse! People mocking instagram photos, acusing them of Munchausen, Telling them they don’t need tubes, don’t need other things. Ascertaining that if they are doing what they’re doing in the photos, they are not chronically ill! Erm, excuse me, but how can you say that, just by looking at a photo! This sort of harassment and judge and dury behaviour, needs to stop! I really hope this group is shut down, for good! I have sadly found, that in the chronically ill community, most of them are down right bitches. Excuse my french here! I do not normally swear, but that is what they are! Gossiping about each other, causing drama, lying about others, he said/she said. In my view, people like that do not belong in a community that is supposed to support each other! I’ve seen enough to know for myself. I’ve been involved in some of the drama and it’s not pretty! THERE are certain people who like to get a kick out of upsetting others. Stalking their social media, posting about them in public, all over twitter and facebook, in order to make themselves look big and clever! Well, I’ve got news for you, It’s far from big! It’s far from clever! You just make yourself look small, embarrassing and should be ashamed of yourself! An embarrassment to the chronically ill community. Now that is off my chest, I’m going off to have a go at learning to play chess. I used to play but I was a beginner and still am. I’m still learning where all the pieces go and what they do. Hopefully I’ll get the hang of it eventually.